19 Comments

  1. Eden Mint
    October 27, 2015 / 6:10 pm

    I found this very interesting to read and learn more about the chronic illness. Having a bag is a smart idea with nice things to occupy your time. Have a nice day :)http://www.mintnotion.com

  2. Cristina on Campus
    October 27, 2015 / 6:43 pm

    So glad you shared this, girl! I've been in and out of doctor's offices lately, and even though I am not receiving infusions, these are good essentials for just sitting in a waiting room for long amounts of time! I need one of those coloring books!

  3. Breakfast at Lillys
    October 27, 2015 / 7:13 pm

    Oh wow, it was really interesting to learn about your infusion process as an outsider. What great essentials for keeping yourself busy. I need to get my hands on one of those adult coloring books. xoxo, Jenny || Breakfast at Lillys

  4. Fairy Princess Jord
    October 27, 2015 / 8:07 pm

    I don't have infusions but I still found this post incredibly interesting. I am sure the tips you shared are super helpful for other young women going through the same thing. I know my Dad has to get infusions of remicade-he hasn't ever really talked about the process so I had no idea what it was even like. I think it is wonderful you try and look at your time in the hospital as "me time".

  5. Allison
    October 27, 2015 / 9:32 pm

    Oh wow! You are such a trooper! I love that you look at it as me-time–that's so positive!

  6. Anonymous
    October 27, 2015 / 11:32 pm

    Really appreciate that you took the time to address the reality of getting regular infusions and living with a chronic illness. It can't be easy. Your essentials and your positive perspective about the whole situation make it seem so bearable! This is such a great and relatable resource.Alessandra | blog.pumpup.com

  7. Melissa Mooney
    October 27, 2015 / 11:38 pm

    So I totally agree with everything you said. I have a really rare form of anemia so I have to get transfusions every 4-6 weeks since coming off prednisone. I've been getting them my entire life and up until about 3 years ago I got one every three years, now not so much. I totally get it about the appitite and your body knowing. Unfortunately I have to wait till my hemoglobin gets low enough to transfuse. The waiting he sucks. If you ever want to talk or text I'm here. Oh and I get two units of packed red blood cells. And because what I have is Diamond Black Fann Anemia. No one knows about it and it's genetic.

  8. Nicole Simonetti
    October 28, 2015 / 2:15 am

    What's crazy is that my uncle has ulcerative colitis. I'm glad you're finding ways to treat it…I know he wasn't that lucky @ a young age, as it was years and years ago. Sending my love gf! x Nicole | http://www.changeanddress.com

  9. Lauren Ashley
    October 28, 2015 / 2:24 am

    Wow. You are so strong. I have a chronic illness too (fibromyalgia) but feel nowhere near as strong as you are. I love your entertainment items and your outlook on the whole situation! Laurenwww.thefashionistasdiary.com

  10. Nicole
    October 28, 2015 / 2:35 am

    I am amazed by your strength to continually do infusions. I really found this post interesting, because I don'y know much about it. I feel like I learned a lot about you in this post and that makes me smile! I have so much respect for you. Keep on coloring and keeping your spirits up! You're the best! Nicole // Chronicling Home

  11. Kayleigh Adam
    October 28, 2015 / 2:44 am

    Such a great awareness post. I admire your strength for sharing!www.kayleighskloset.com

  12. Southwestern Prepster
    October 28, 2015 / 2:55 am

    These are great tips – thank you for educating us all! What a great way to change the way to think about it!

  13. Kate Steadman
    October 28, 2015 / 3:06 am

    Wow, what a thorough and well written post! I love that you mentioned to think about it as "me time" that is such a great outlook!xo,Sara Kate Styling

  14. Annaliese
    October 28, 2015 / 4:48 am

    I absolutely loved this post and learning a bit more about your chronic illness! I had no idea that you had this for so many years. I love how positive your attitude is about getting your infusions done – definitely something to admire. πŸ™‚ xoxo Awww.southernbelleintraining.com

  15. Just Jess
    October 28, 2015 / 12:23 pm

    I am sure this will be an amazing resource! I love that you have spun it to be time away for yourself. I just got an adult coloring book for my vacation last week and it was so relaxing to just color and focus on that.

  16. Jordyn Upchurch
    October 29, 2015 / 3:52 am

    I love that you are so willing to share this with others, especially those that may be scared at the idea of going through the same thing! When my husband's grandmother started getting dialysis this past year I bought her a blanket poncho and an adult coloring book-she loved them and still uses them on her trips-she says they make her feel young ;)xoxo, SSThe Southern Stylista

  17. Ashley Brooke Nicholas
    October 29, 2015 / 9:51 pm

    What a helpful post for people with a similar condition! You are so strong to deal with your health problems with such courage and grace! Love your attitude!

  18. Anonymous
    June 4, 2017 / 10:05 pm

    I found this very helpful. I just received my first remicad treatment last week. I didn't have any noticeable symptoms until 5 days later. I was extremely tired for at least 4 days and lots of arthritis inflammation. I'll be getting my second infusion in 4 days I hope things get better.

  19. Anonymous
    January 31, 2018 / 11:17 pm

    Wow thank you for the share, it was on point!! I get Infectra infusions every 8 weeks, for Crohn's. I wish I would have done more research online to know what to expect. My first infusion was fine because my sister came with me and kept me entertained. However all the others after I have gone on my own. I would say about three infusions in I finally made a bag to take and add new stuff to it all the time. I love to do all kinds of craft project and sell my projects around Christmas time. Thanks to my "Me Time" during my infusions I am pretty much stocked up for done projects by November and no longer have to stress to get enough done to fill my booth. When you go into your infusion center you should ask them where the blanket warmer cart is. I always grab three or four warm blankets before I head into my treatment room. They keep me nice and comfy through the whole three hours and they are great to warm up your arms so its easier to find a vein for the IV. Thanks again for the share.